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Lincoln SkyView
Fighting a Brain Tumor Save Email Print
Lincoln, Neb.
Posted: 9:45 AM Aug 26, 2008
Last Updated: 10:16 AM Aug 26, 2008
Reporter: Jason Volentine
Email Address: jason.volentine@kolnkgin.com

A | A | A

A month ago, 10/11 brought you the story of Shelly Jones who was diagnosed with a brain tumor, but she doesn't have insurance to get the life-saving surgery she needs.

Since then, she's been doing all she can to get help, but she's still waiting. Meanwhile, the pain is getting worse.

The surgery will cost Shelly Jones more than $150,000 -- money she doesn't have. Her husband E.J. works 13-hour days to support her and their son Taye, but the money he makes is nowhere near enough for the surgery. Oddly, however, it's just enough to keep them from getting public assistance. Now that her condition is preexisting, there's no hope of insurance.

Some days are good for Shelly. Others days, the brain tumor takes control of her.

"The headaches have been coming back," said Shelly Jones.

When 10/11 talked to Shelly a month ago, she'd just found out she had a brain tumor. Despite not having insurance, she was optimistic her surgery would come quickly. Now she's come to a different realization.

"They're saying to get supplemental security income, it's 90 days and the disability could be 90 to 120," she said.

Shelly and E.J. have been run through the system and, so far, they've come out on the other end frustrated.

"Gangbangers -- they get shot up and who pays for that? Their surgeries?" questioned a baffled E.J. Jones. "They get immediate surgery and we all pay for that. But can we get something for my wife? No."

Her husband E.J. makes too much money for direct public aid, and medicaid requires matching funds of nearly $2,000 a month on top of the roughly $10,000 they owe for Shelly's initial diagnosis.

"For us to come up with that money is really hard," he said. "The only way we can get something is if we separate, or divorce, or if I quit my job," he finished, laughing at the irony.

Meanwhile, Shelly's tumor does more damage and no doctor will schedule a surgery without the money.

"That's the main concern. When's the surgery going to be? How is it going to turn out? If I'm going to have disabilities, paralysis?" Shelly wondered.

But with one glance at her 3-year-old son Taye, Shelly knows she must make it through.

"We try not to show our main concerns or worries in front of him, but he knows. He's not stupid," E.J. said.

"You try not to let it get you down, but it does. So, you just have to keep a positive attitude," Shelly said.

Some local businesses are helping out. The information on you can can too, is below:

Fundraiser for Shelly Jones.
Cappies Hot Spot Bar & Grill
5560 S. 48th Street #4
Food, Live Band, Raffle
Sept. 26, 5:30 p.m. - 1 a.m.

You can also bring cash donations at any Tier One Bank

Businesses wishing to donate a raffle item, contact Teresa Weaver at: 402-464-5114.

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Posted by: Teresa Location: Lincoln on Nov 7, 2008 at 11:55 AM
Surgery is on hold due to extremely high blood pressure.

Posted by: Teresa on Sep 16, 2008 at 10:54 AM
Surgery date has been scheduled for Shelly, it's about time. The surgery date will be November 7th. Please keep her and her family in your prayers.

Posted by: Teresa Location: Lincoln on Sep 8, 2008 at 07:59 AM
we are still in need of NU Football tickets to be donated. Please can someone step up to the plate and help us so this can be the GRAND PRIZE for our Raffle Drawing?

Posted by: Teresa Location: Lincoln on Sep 5, 2008 at 11:23 PM
I'M Seriously in need of someone to donate 1-2 pairs of NE Football/Volleyball tickets for this benefit for the Grand Prize Drawing. If anyone can help me, please call me. I've been trying everywhere and can't find someone willing to DONATE their tickets to a great cause.

Posted by: Teresa Location: Lincoln on Sep 5, 2008 at 11:02 AM
We are now pre-selling Lincoln Stars Hockey Tickets for the October 10th game and $7 of the ticket price comes back to Shelly's medical fund at TierOne Banks. If you would like to order the Stars tickets, please contact me at 402-464-5114. Help us reach our goal of selling 200 tickets for this game.

Posted by: hmmmmmm Location: lincoln on Sep 2, 2008 at 11:12 AM
Why isn't the place that Shelly use to work for helping out or doing something for her? Normally you see employers helping their past employees, but not in this situation.

Posted by: Teresa Location: Lincoln on Sep 2, 2008 at 07:20 AM
to "help these people" You are exactly correct, and we appreciate your comment on here. This is truely a family in need, it's been a waiting game since June, and who knows how much longer it will be. We do know there are some events happening to help raise that money. Keep an eye on this website for updated information.

Posted by: Teresa Location: Lincoln on Sep 1, 2008 at 08:53 PM
Shelly is in terrible pain each and every day, but she knows that she must fight for her husband and 3yr old son. Just recently she was in so much pain and she had to call her husband home to care for their son. People out there that abuse this system, and you know who you are, should be ashamed of yourselves.

Posted by: Twin brother Erwin Location: Phoenix, AZ on Aug 31, 2008 at 06:11 PM
I want to sincerely thank everyone for their POSITIVE comments regarding my twin brother & his family. We were raised by our very loving mother and father. We were raised to work hard and provide for our families. I know my twin brother is doing just that. Yes it is sad when others can get what he can't when he works so hard. I, like my mother if I were in a situation where I could help I would. Sometimes we do what we need to do to provide for our families, and it may mean not obtaining the High cost of Insurance, MY nephew needs to eat, he needs shelter, and he needs the loving support of his mother & father. He is not asking for a handout, he is not asking you to feel sorry for him, my nephew or his wife. This is a very unfortunate time in their lives and a just a little assitance would help keep a family together. EJ, Shelly and Taye, we love you and pray for all of you. Erwin, Erwin Jr. Jamaal, Cedric

Posted by: help these people Location: Lincoln on Aug 30, 2008 at 03:42 PM
These people were spotted shopping at a local grocerie store and they are not how you idiots that think you know it all think they are they DO NOT DRIVE THE VEHICLES YOU THINK you guys need to grow up. WHAT IF you woke up tomarrow and lost your job and all of the sudden could not afford your insurance/COBRA and then a month later found out you had cancer and no doctor would do your surgery and then your could not afford your bills what would you do? You guys need to wake up and look at reality hear and not post comments about people unless you know the situation we do not know these people but they were spotted at a grocery store and they did NOT look well at all and their car WAS NOT A NICE CAR. I THINK THEY NEED ALL THE HELP THEY CAN GET. I my self am a student in school and if i had a million dollars to give i would pay for her surgery this second. Dont post comments unless you know what you are talking about. I am sure if they could afford insurance they would have it no doubt.

Posted by: Mom Location: Arizona on Aug 29, 2008 at 11:06 PM
My heart aches everyday for my son EJ, Shelly and Taye. I pray for them all through the day. I do not have the resources to help them financially; but I am confident that are creator has not forgotten them. Giving up food and shelter would be the only way that my son could afford insurance. He does not have the luxuries many take for granted. The biggest thing for them is to go to Pet Smart and look at the fishes or go to park. Judge what we know for fact, not what we do not know. Love, Mom

Posted by: LAURA Location: COZAD on Aug 29, 2008 at 12:01 AM
i hope everything goes well and find drs that can help get through this. i know what it's like to lose someone close. my brother passed on this last wed to a rare bonemarrow cancer after fighting it for 13 yrs he was only 24.

Posted by: Robert Location: Lincoln on Aug 28, 2008 at 09:29 PM
Hey, to whoever thinks these people waste their money on cell phones and the like, I am proud to say I work with this man, and the only cell phone he can use is from our company and for work use only except for emergencies. They dont have a computer and his car is as old as mine.He is one of the most caring and hard working men I have know. I dont know why some folks just assume everyone can afford insurance, if it wasnt for my wifes job, I wouldnt have any either!

Posted by: friend of Shelly Location: Lincoln on Aug 28, 2008 at 02:05 PM
Can't believe someone asked me this morning if my outlook on this story to get it out and about is because of my political views or is this really something that is series. OMG get real, this is series and I don't care who is president now or who will be president. There are issues with the HEALTH CARE PROGRAMS AND PLACES WE HAVE TO GO, that is my point.

Posted by: Carol Location: Lincoln on Aug 28, 2008 at 09:32 AM
I feel for this mother it shouldnt matter what this cost it is her life and it will effect her children and husband. My prayers are with them possible some of the health care could do some probonno for some one in our country and not always for some one from another county or in another country. With Health Insurance being so outrage this people probally decided having a roof over there head and food for there kids and them selves was more important ...check it out the cost of Insurance is outragious most people cant afford it, with out paying for cable, cell phones ,,,,etc. for my son and his daughter the cost is better than $420.00 a month and believe me with gas prices and food ..rents, day care the average person cant afford it unless pay increases and that doesnt seem to be happening. God Bless this family

Posted by: Teresa Location: Lincoln on Aug 27, 2008 at 09:24 PM
To add to the last comment, they drive a 1989 Pontiac that has no air conditioner and is on it's last leg. But entire point of this story is: our HEALTH CARE SYSTEM NEEDS TO BE FIXED SOONER RATHER THAN LATER.

Posted by: Teresa Location: Lincoln on Aug 27, 2008 at 01:10 PM
Lindsay~~This family has no internet, no cell phones, does have a cheaper older car, and just purchased their home 3 years ago. With the bad credit and all they have, who would rent to them? $150,000 isn't even close to what the bill is going to be. The estimated cost of surgery is over $200,000 and Dr. Tommes has to bring in another 5-6 doctors in from the outside to aide in this surgery. They needed to make a decision and they thought they needed a place to live; because at the time they dropped insurance, Shelly was in pain, but had no clue as to how severe this was. The pain got worse and worse and finally I decided it was time to take her to the ER and get something done. I know for a fact, that they regret what they did, but at that time, she was healthy.

Posted by: Valeri Location: Lincoln, NE on Aug 27, 2008 at 10:43 AM
Lindsay - Nobody said that this family is living a luxurious life and deciding to pay for the cable, cell phones, and expensive cars instead of health insurance. Not everyone can afford it, plain and simple. The point of the article is to show that there is a person in need and they aren't able to get any financial assistance. Rather than attacking this family and accusing them of being reckless, try supporting a worthy cause.

Posted by: Teresa Location: Lincoln on Aug 27, 2008 at 07:30 AM
You know, EJ is 100% correct. No one stops and think, hey does this gang member have insurance, NOOOOOOOOOOOOO They get that person in there and they have surgery. Prisoners~~ they have it better than we do on the outside. They get surgery when needed, who supports and pays for that, we the tax payers. This system is messed up and someone President, Governor or whomever need to realize this and change this.

Posted by: Lindsay Location: Lincoln on Aug 26, 2008 at 03:02 PM
I agree with Lincolnite. Health care is not an optional investment. You cancel the cable, the internet, cell phones, drive a cheaper car, move to a cheaper home- but you do not let your family go without health insurance. Look at this family, they are going to be paying for that decision for a very long time- $150,000 worth. My heart goes out to this family and I wish them the best, but I hope others that are questioning whither or not they need to keep their health insurance will see this story and decide the risk is not worth it.

Posted by: bj Location: seward on Aug 26, 2008 at 12:59 PM
this is heartbreaking, a family who needs help and can't get it. Yet if she was an illegal, she'ld get the medical assistance she needs and we'ld foot the bill and not think twice about it. It's time our country starts taking care of our own & helping the working family. There's something very wrong with this picture.

Posted by: Teresa Location: Lincoln on Aug 26, 2008 at 11:15 AM
We need some of the big companies around in Lincoln to help donate things for the raffle they will be having. Please, step up and help us.

Posted by: friend of Shelly Location: Lincoln on Aug 25, 2008 at 10:03 PM
Did you family member come out ok from the surgery, or did they have the vision, hearing, speaking loss? I pray that she can come through this, this family really needs some help, if not, she will not have the surgery.

Posted by: Anonymous Location: Kentucky on Aug 25, 2008 at 08:58 PM
I will pray for you and your family. If I were rich, I truly would pay for everything. It is so sad that your husband has worked and is still working and there is so little help for you. God is the answer and He will definately see you through this. He has your miracle.

Posted by: STZ Location: Kansas former Nebraska on Aug 25, 2008 at 04:51 PM
Health and Human Services, or Social Services, whatever its called these days, ought to help this lady out, they dont seem to have a problem helping out people that dont want to work that sit at home all day and spend their welfare checks on beer and cigs. This ladys husband is working and makes too much money for help? I think Health and Human Services ought to buck up and do something to help this lady out!!!

Posted by: Praying... Location: Lincoln on Aug 25, 2008 at 04:22 PM
I have a family memeber that has had 3 brain surgeries. Luckily enough he does have insurance, but trying to understand what life would be like without that is almost impossible. Dr. Kent is an amazing doctor and has really helped my sibling out in tremendous ways. I really hope he will be able to help Shelly. I can honestly say I've learned to never complain about paying for any type of insurance because you never know when life will change on the drop of a dime!

Posted by: friend of shelly Location: anonymous on Aug 25, 2008 at 04:06 PM
Dr. Kent is the one we originally seen at the ER, and Dr. Tommes is with him and that is who is planning on doing the surgery. He said he wouldn't do it because it was so severe. But he is fully aware of this tumor, he is the one that found it that night at the ER at BryanLGH West. Thank you so very much.

Posted by: Anonymous on Aug 25, 2008 at 03:18 PM
Dr. Christopher S. Kent at Bryan LGH West said he would help. 402.488.3002.

Posted by: friend of Shelly Location: Lincoln on Aug 25, 2008 at 12:55 PM
Lincolnite: I do not call $600 per month cheap insurance for a family of 3. The problem here with this entire situation is how long it takes for this process. Paperwork was turned in July 3rd, it's still not been presented in front of the board, and that is uncalled for. If she were single, this would not be an issue, and how sad is that.

Posted by: Lincolnite Location: Lincoln on Aug 25, 2008 at 12:05 PM
There is no excuse for people not carrying some type of health insurance. If nothing more, carry something with a high deductible. You can get something like this relatively cheap on the front side. It may have a $25000 deductible, but at least it puts you in a position if something catistrophic like this happens. There are lots of people in this same position. We should pray for them and assist where we can, but some of this can be avoided.

Posted by: Melissa Location: Lincoln on Aug 25, 2008 at 11:05 AM
Cant the doctor just buck up and do the surgery and take it on as a charity case. I know hospitals can do that with certain situations. Its not like the husband is sitting at home doing nothing and wanting the surgery. He is a working father, trying to support and watching his wife suffer because "he doesnt make enough" or "they dont have the money", etc. This world is sick and wrong sometimes. Where is our heart these days? You just going to let her sit there and suffer?

Posted by: Luanne Location: Lincoln on Aug 25, 2008 at 08:59 AM
This woman and her family need help!!! Her husband is making too much money for help???Are the criminals doing anything and they have excellent medical care & housing. Here is a young family struggling when time is of the essence for her. She needs the help, not those who never offer anything to society. Offer whatever you can,help her with meals and housework,take care of baby,buy groceries,gas cards,and a dollar or two adds up. We need good young families to survive and go forward.

Posted by: Anonamous Location: Beatrice on Aug 25, 2008 at 08:42 AM
How horrible for this family. They are right! There are people who use the system, who stay at home just so they get everything paid for by the system. but, people who really need the help cant get any... How fair is this!

Posted by: dishy Location: lincoln on Aug 25, 2008 at 12:27 AM
This is the time and place for someone with a enough money to step and help. Do something for someone who truly needs help. And to the system, people in the system-you have failed.

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